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allancurran

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 #1 
I contacted you 8 weeks ago [Piano thread].  I’ve not had much change to be honest although I was privileged to have 5 days in a row last week where my Tinnitus was very quiet all day, which is highly unusually even before my ‘Piano spike’.  There have been days in the past 8 weeks  when I had one decent day in every 10, so to have 5 days in a row is like a miracle to me.  I almost felt like I had a normal life.

Now it’s back with a vengeance.  Is this a sign that following my spike that its beginning to settle?  If it is, why does it come back again with such venom?  Can I expect peaks and troughs on the road to a return to baseline? Or is there just no rhyme nor reason to it all?

Also – you’ve obviously reached a point in your mind where no matter how bad it is it doesn’t bother you.  I was like this before my piano episode, but I really don’t know how to find my way back to this point in my mind.  I know it about acceptance but it’s a very difficult point to reach as you have that inbuilt fear response to it, particularly when its brand new to a new person or a new noise to an existing person.

Do you have any tips please that can help me reach this, what I would consider, spiritual point, a higher level of acceptance?
Dr. Nagler

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 #2 
Quote:
Now it’s back with a vengeance.  Is this a sign that following my spike that its beginning to settle?  If it is, why does it come back again with such venom?  Can I expect peaks and troughs on the road to a return to baseline? Or is there just no rhyme nor reason to it all?

Allan, it seems to me that you are still trying to "figure out" your tinnitus. In my opinion the first step to overcoming your tinnitus is when you have finally figured out that you can't figure it out. Perhaps it's time for you to take that first step?

Quote:
Also – you’ve obviously reached a point in your mind where no matter how bad it is it doesn’t bother you.

That's not true. I have reached a point where how loud it is doesn't bother me. But if it ever got "bad," that would be the textbook definition of bothering me.

Quote:
Do you have any tips please that can help me reach this, what I would consider, spiritual point, a higher level of acceptance?

I have just now read through all of your posts again, Allan, and it seems to me that you could really benefit from some personalized help. The problem lies in identifying sources of quality personalized help as opposed to some sort of cheerleader who claims to know something about tinnitus and tinnitus-related distress, but who in fact does not. If you tell me the nearest large city to your home, perhaps I could make a recommendation. Alternatively, you and I could set aside an hour to communicate privately one-to-one by Skype or phone so I can try to put it together for you and get you pointed in the right direction. In short, I am not sure that your best interests will be served by continuing to scour through various tinnitus boards, including this one! You have tinnitus - but your tinnitus also has you. It's time for you to take charge!

Hope this helps.

Stephen M. Nagler, M.D.

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The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
allancurran

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 #3 

Hi Dr Nagler

I live just outside  Newcastle upon Tyne in England.  I know you have mentioned specialist in the UK before and although we are a small country compared to our American cousins, if you did know someone near this area that would be great.

I am certainly in need of help so I will consider your kind offer, as its the silly season that might not be until the New Year however.

I just cant believe that after 20 years of living with and eventually accepting this about 2 years into it , then finally with no emotion other than the occassional 'its a pain', I'm back to square one.

I'm taking a break from trawling Facebook and all the other webpages as you suggest as whilst they have been a source of comfort at times subconsciously I think the more negative aspects can get to you.

If anything, anxiety and depression are the bigger issues.

Thank you

 

Dr. Nagler

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 #4 
Not exactly next door to you, but Jacqui Sheldrake and Laurence McKenna are in London. Both are incredibly knowledgeable and highly experienced. If your major issues are tinnitus-associated anxiety and depression, you might contact Laurence firstt as his background is in psychology.

Stephen M. Bagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
allancurran

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Posts: 11
 #5 
A little far for me, but thank you.
Dr. Nagler

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 #6 
You are welcome, Allan.

FWIW, I traveled three times as far for help when I was suffering back in the mid-1990s. Intrusive tinnitus is not exactly a condition of convenience!

All the best.

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
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