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Jon Mayes

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 #1 
Hello Dr. Nagler,
It's been a long time since I first contacted you about my tinnitus. When I did I was in a very bad way, had serious thoughts of suicide. Since then I went through TRT and have moved away from those dark days. I still find it bothers terribly although there are hours now that go by when I am distracted enough to be able to function almost normally. I've never been able to get close to the point where it doesn't bother me though, it's like I got 75% up the ladder but can never seem to go any higher.
Anyway, that's not why I'm writing, I just read a very promising article about the work of Jeffrey Karp, associate professor of medicine at Brigham and Women's Hospital.
https://www.pri.org/stories/2017-03-20/new-treatment-could-combat-hearing-loss-regenerating-hair-cells-inner-ear

Forgive me if you have already talked about it, I don't, on your recommendation, log in as much as I used to.
Thanks,
Jon
Dr. Nagler

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 #2 
Quote:
Hello Dr. Nagler,
It's been a long time since I first contacted you about my tinnitus. When I did I was in a very bad way, had serious thoughts of suicide. Since then I went through TRT and have moved away from those dark days. I still find it bothers terribly although there are hours now that go by when I am distracted enough to be able to function almost normally. I've never been able to get close to the point where it doesn't bother me though, it's like I got 75% up the ladder but can never seem to go any higher.

Hello Jon. I remember you well, and I am glad to hear that you "have moved away from those dark days." That said, though, the idea that your tinnitus still bothers you terribly save for when you are distracted tells me that you might want to seriously consider reconnecting with your TRT clinician - because other than the fact that you no longer have dark thoughts (which is great!), you should be doing much much better at this point in time.

Quote:
Anyway, that's not why I'm writing, I just read a very promising article about the work of Jeffrey Karp, associate professor of medicine at Brigham and Women's Hospital. 
https://www.pri.org/stories/2017-03-20/new-treatment-could-combat-hearing-loss-regenerating-hair-cells-inner-ear 

Let me start by saying that Dr. Jack Vernon (1922-2010), a wonderful man and dedicated tinnitus researcher whose opinions were always worthy of serious consideration, felt that stem cell research held the key to the cure for tinnitus. So Dr. Vernon would be very excited indeed about Dr. Karp's work.

For me, while I think that stem cell research may someday significantly improve the lives of millions with hearing loss, I am not so sure that stem cells will be able to return the cochlea to such a pristine state that the result would be resolution of the internally-reinforced conditioned responses within the brain that are in my opinion at the heart of tinnitus intrusivity.

From a practical standpoint, what does that mean? As I see things, it's full-speed ahead with stem cell research for what it can potentially do for hearing loss - but in terms of tinnitus, I personally think it's still wait-and-see.

Hope this clarifies more that frustrates.

Stephen M. Nagler, M.D.
Atlanta Tinnitus Consultants, LLC

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The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi
Sylvain

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 #3 
Hello,

My name is Sylvain, father of three sons and husband to a a wonderfull wife. I experience what I consider a strong tinnitus for almost 6 month. Was very hard at first but is now tolerable. I too read a version of this article. See the link below:

https://www.sciencedaily.com/releases/2017/02/170221120810.htm

I have earing aids (with Tinnitus masking sound) now for about two months and this help me a lot. I estimate the reduction to be around 30 to 35% which is good but not as good as I would like. In other words, the fact that the earing can improve might not cure Tinnitus but will, at least, help a lot of us including me.

I know ATA and other worldwide organizations are trying to finance groups of research working on eather find out how Tinnitus works or find a cure for it. 

I must ask the forbidden question no one wants to ask but everyone would like an answer (sort of):

Seeing how research is progressing and where they put most of their efforts and money, when do you think, from your point of view, we could one day see a cure for Tinnitus? Are we talking about months, years, decades? You can put % for each example 10%-50%-40%.

As you probably noticed, I don't have any background in medical so maybe it's the reason I ask this probably impossible question to answer. But from my point of view, I'd like to have the opinion of someone who's living it and know how the medical world works. Just want to know where I'm heading to.

Thanks to take part of your time to read and answer questions from newbies like me in the world of Tinnitus.

Sincerely,

Sylvain
Dr. Nagler

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 #4 
Hello Sylvain -

You ask a difficult question. I will answer it, but I want to make three important points first.

#1 - Today - right now as we speak - there are in existence some very effective and reliable approaches towards facilitating the habituation of tinnitus so that even though one might have tinnitus, one need not suffer from it.

#2 - Today - right now as we speak - there are in existence some very effective and reliable approaches towards providing appreciable relief through the use of masking sounds such as what you yourself are doing.

#3 - Whether I believe that someday there will be a cure for tinnitus or whether I believe that there will never be a cure for tinnitus is totally irrelevant. What I mean is that either there will be a cure or there won't be a cure, and what I think about it will not alter that reality in the slightest.

Now, to your question:

Quote:
Seeing how research is progressing and where they put most of their efforts and money, when do you think, from your point of view, we could one day see a cure for Tinnitus? Are we talking about months, years, decades? You can put % for each example 10%-50%-40%.

I do not believe there will ever be a cure for tinnitus. 

Why do I believe that there will never be a cure for tinnitus? It's because tinnitus is a naturally-occurring phenomenon. Everybody's ears will ring in a totally soundproof room - because the normal auditory system does not only receive signals from the environment; it makes signals of its own. The problem, thus, is not the existence of tinnitus, but rather its intensity and (more importantly) how you react to your tinnitus, which is something over which you have no conscious control. In other words, tinnitus is a moving target, the presence of which is a normal physiological occurrence. And I think the likelihood of curing a normal physiological occurrence is remote.

But that said, I have donated thousands and thousands of dollars to tinnitus research in the hopes that I am wrong.

Stephen M. Nagler, M.D.


__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi
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Dr. Nagler's Tinnitus Corner is provided for education and information only. It is not intended for the purpose of providing medical care and should in no way substitute for appropriate in-person consultations with qualified healthcare professionals. By using this site, participants agree to hold Dr. Nagler and Atlanta Tinnitus Consultants, LLC harmless with respect to any loss, injury, claim, liability, or damage arising from following the postings herein.