Dr. Nagler's Tinnitus Corner
Sign up Latest Topics
 
 
 


Reply
  Author   Comment  
Natalie

Member
Registered:
Posts: 4
 #1 
Hei Dr.Nagler!
I write "hei" because that is how we say "hi" in Norway, and also trying in a funny way to excuse my potentally lack of language skills.

I have lived with tinnitus for 4-5 years and now I manage fine with the help of some TRT, cognitive therapy and also deciding to just "let it go". But the last 6 monthes I have had a few incidents were I suddenly get this super low freq. drone sound in my ear. But when I talked or touched my ear(?) it went away. Recently (within a few days) this fenomena has become almost permanent and sometimes my own voice makes it flare up, but espcially lower male voices, outside traffic, chewing, turning my neck to fast, and sleeping on the side of the affected ear is the worst. I goes away when I talk, but when it at it's worse it come back imidiately when it is quiet.

This fenomena seems more like some kind of overstressed eardrum/inner ear rather than tinnitus. I have had thumping in my ear (myoclonus?) but that had more of a drumming sound to it. But maybe there's some kind of relation to it still. And of course my fear of it makes it come stronger and more ofte, a tough spiral to brake.

I would be so grateful if you have any advice on this strange thing I am percieving!

Best Natalie
Dr. Nagler

Owner
Registered:
Posts: 1,668
 #2 
Hei Natalie!

Din engelsk er utmerket. :-)

It is very difficult for me to determine exactly what is going on without a thorough evaluation. I suspect that what you are describing is a "somatosound" rather than tinnitus.

Let me ask you this: You say that your fear of it makes it come on stronger and more often. What is fueling that fear? I mean, what is it *exactly* about this particular phenomenon that frightens you? Can you put it into words?

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
Natalie

Member
Registered:
Posts: 4
 #3 
First of all thank you so much for your quick responce! And secondly for complimenting my language skills:) Jeg gir deg terningkast seks!

I think you may be right since my previous experience with tinnitus was that the sound was not changing, only my perception of it, but this thing fluctuates and I can kind of "control" it.

When I first got tinnitus I struggled A LOT. My life was put on hold for many years and that was a big trauma for me. Now my life has turned out good again but this current experience makes me cringe, both because it is much louder and more intrusive than my tinnitus and I am scared this will be a new "normal", but also the ghost from the past scare the hell out of me.

Thanks again.
Dr. Nagler

Owner
Registered:
Posts: 1,668
 #4 
Quote:
First of all thank you so much for your quick responce!

Vær så god.

Quote:
And secondly for complimenting my language skills😉 Jeg gir deg terningkast seks!

Du bør gi de seks terningene til Google oversetter!

Quote:
I think you may be right since my previous experience with tinnitus was that the sound was not changing, only my perception of it, but this thing fluctuates and I can kind of "control" it.

You did quite well with a sensation you could not control. What exactly is it that makes you fear a sensation that you apparently can control?

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
Natalie

Member
Registered:
Posts: 4
 #5 
Hah!

By control I meant more like being able to sometimes stop the sound or even provoke it to become worse (why would I do that??). But I also see your point. I did well (in the end) with something I definitely knew I was stuck with, but the process of dealing with it and my anxiety towards it shut my life down for so long, and that is my probably my biggest fear, to go through something like that again.

Maybe I should turn fear in to some kind of energy and try to motivate myself..NOT AGAIN! More easly said than done:) But I have an upcoming appointement some time in the future with a really qualified therapist in the field, who helped me a few years back.


Dr. Nagler

Owner
Registered:
Posts: 1,668
 #6 
Natalie, I think you are very wise to have arranged for a proper evaluation performed by somebody who is qualified. All I can do here is offer an educated guess.

As far as turning your fear into some kind of energy towards motivation, I think that's asking a lot of yourself. Why not just work on understanding that your fear is based in emotion rather than in rational thinking. The motivation will follow in time on its own accord!

By any chance do you drink much coffee or tea? Do you eat much chocolate?

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
Natalie

Member
Registered:
Posts: 4
 #7 
Almost no chocolate/coffee, but sometimes a cup of herbal tea..gotta enjoy myself some!

I first recognized these sensations after painting a ceiling and putting a lot of strain on my neck. I also had an 'attack' once after a quite heavy and emotional discussion, so my theory in the beginning was that it had something to do with tension in my neck/jaw.

I told my father about this and he could tell that he has experienced these sensations himself on and off for maybe as long as 20 years, but never continously., mostly if he is around loud refrigerators/fans/engines. He is not enjoing it either but has kind of resigned to his body with it's unpredictable and sometimes unexplainable symptoms and sensations:)

I still find it strange that it will go away when I talk. As if the vibrations from my voice stabilizes the 'hyperactive hum'.

Well, well. I could definitely get obsessed with the search for answers, and it is probably a strong instinct in the human nature, But talking to you, well aware of your story and personal experience, has a strong impact on me. I have started to rewiewing last days achievements/enjoyments in spite of 'whatever this is', and comparing it to how low I felt in the early months a few years back. That also feels positive in a way.
Dr. Nagler

Owner
Registered:
Posts: 1,668
 #8 
I mentioned coffee, tea, and chocolate only because on rare occasions caffeine and chocolate have been associated with the types of sensations you describe. I honestly would never dream of giving up caffeine and chocolate myself, but it was just a thought.

I wish you well.

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.



Dr. Nagler's Tinnitus Corner is provided for education and information only. It is not intended for the purpose of providing medical care and should in no way substitute for appropriate in-person consultations with qualified healthcare professionals. By using this site, participants agree to hold Dr. Nagler and Atlanta Tinnitus Consultants, LLC harmless with respect to any loss, injury, claim, liability, or damage arising from following the postings herein.