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Dr. Nagler

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 #16 
Christian, you wrote:

“I firmly believe that such a confusing, loud bass sound in an ear can cause more trouble than anything else.”

And as justification for that belief you cited a study of one, your own experience. But the general experience in the overall tinnitus population is that pitch plays no role in habituation.

So basically you have done well habituating your other tinnitus sounds, but you have a new one that is posing problems for you. That is not at all unusual!

The biggest problem that I see in all of this is that you have pretty-well convinced yourself that you are stuck in a real mess, and you see absolutely no light at the end of the tunnel (to use your phrase) when the reality is that you are facing a considerable challenge, but one that can be overcome with some help.

Let me change the subject for a minute. Forget tinnitus for the purposes of this question. Let’s say that you had a life-threatening heart condition and that there was an experimental treatment available that could with an 85% probability give you twenty or more years of productive and enjoyable life. The problem is that the treatment is so new that the NHS does not cover it. And the second problem is that without it you will not live four more months. [Yes, I know, it’s a very morbid question.] The treatment costs a lot (£7500), but unfortunately you have very limited personal financial resources.

Without the treatment you will die; with the treatment you have an excellent chance of living a totally normal life.

What do you do? How can you get the money? Your church, relatives, friends, bank loan, credit cards, second mortgage, what? Time is if the essence.

Please humor me and answer this ridiculous hypothetical as if your life depended on it.

Stephen M. Nagler, M.D.

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The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
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David McCullough quoting Wilbur Wright
englishman

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 #17 
Hi Stephen.  Your hypothesis makes complete sense intellectually and is far from ridiculous.  My question to you would be, aside from the fact that it is not feasible to find monies to have private treatment,  what kind of treatment would you be suggesting in London may truly assist me ?

thanks
Dr. Nagler

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 #18 
Christian, unless a person is totally destitute and completely alone in the world (which I guess is a possibility), it is always possible to find the monies to have private treatment for a life threatening condition. It is a matter of priorities and of pride in developing and accessing resources. Earlier in this thread you referred to yourself as "soon to be a statistic." If suicide is truly a consideration, then by definition you absolutely have a life-threatening condition. Whether the condition is cardiac or auditory is irrelevant. If it is life threatening, then for goodness' sakes take proper action. And if it is not life-threatening, then please do not come on to this board referring to yourself as "soon to be a statistic."

My suggestion would be to contact Jacqui Sheldrake at the Tinnitus and Hyperacusis Centre in London for TRT, which will likely cost you considerably less than the £7500 in the hypothetical in Post #16 above. I would not cut corners. I would not see some other TRT clinician - only Jacqui Sheldrake.

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
englishman

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 #19 
Unfortunately, yes I am feeling suicidal because I cannot deal with what's happening and all my knowledge and experience has not given me sufficient tools to deal with this. Sadly I don't have anyone I can call upon to assist me financially. I do know who Jacqui is and know she is a good and compassionate person who is a specialist. As that is not an option it means I am very troubled waters.
Dr. Nagler

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 #20 
Quote:
Originally Posted by Christian
Unfortunately, yes I am feeling suicidal because I cannot deal with what's happening and all my knowledge and experience has not given me sufficient tools to deal with this.

My friend, I truly hate what you are going through, and I feel for you deeply. But that said, very few of us have the sufficient tools to deal with severe intrusive tinnitus regardless of our level of knowledge and experience. I know I didn't. And the fact that you have some experience with habituation doesn't mean your experience has been anywhere near enough to deal with your current challenge. There is no shame in any of this. It is a reality. Now it is true that some can power through on their own. But I can state unequivocally that I was not one of them. My medical degree and understanding of neurophysiology weren't worth spit when it came to overcoming the beast from hell that had taken up residence in my head. I needed help. BADLY. And I would have cut of my right arm if necessary to get it. You are feeling suicidal? Well I spent weeks on end trying to figure out how to kill myself and not leave too much of a mess for my wife to clean up. How crazy is that???? But I got better. And you can too. Meanwhile, if you are truly suicidal, here is a UK link: 

http://www.supportline.org.uk/problems/suicide.php 

But remember this: While the rate of suicidal ideation (i.e., thinking about suicide) is higher in the tinnitus population than in the general population, the rate of actually committing suicide is no greater in the tinnitus population than it is in the general population!

Quote:
Sadly I don't have anyone I can call upon to assist me financially.

I honestly do not believe that. If your daughter had a life-threatening illness, you would find a way. It might require some creative thinking, but you would find a way. There is no doubt in my mind that you would find a way.

Quote:
I do know who Jacqui is and know she is a good and compassionate person who is a specialist.

Jacqui Sheldrake is the very best in the UK, and one of the three or four best in the entire world. And she works with a wonderful psychologist, Dr. Laurence McKenna, who is another potential excellent resource. Call Jacqui Sheldrake today. Speak with her personally. If you like, tell her I suggested you call. Perhaps she can offer you some sort of financing. Who knows?

Quote:
As that is not an option it means I am very troubled waters.

I know you are in troubled waters. But there is a life preserver right next to you. Take hold of it and get better.

I will keep a good thought for you.

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
Dr. Nagler

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 #21 
To 204dave and englishman (Christian) -

I greatly appreciate your interest in this board and in this particular thread, but please restrict your postings to the Q & A format that makes this place unique. Dr. Nagler's Tinnitus Corner is a site where people who want my opinion can bring their questions and concerns. It is not a forum for discussion or for others to offer opinions and recommendations, however valid those opinions and recommendations might be. I have disallowed three interesting and thought-provoking posts (one from you, 204dave, and two from you, Christian) for that reason and will return those posts to you via e-mail. Thank you for your kind understanding.

And to Christian in particular, there is excellent help available to you on a number of fronts. But the decision regarding whether or not to take advantage of that help rests solely with you. As I stated in an earlier thread, "I know you are in troubled waters. But there is a life preserver right next to you. Take hold of it and get better."

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
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