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3745nicoles

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 #1 
Good afternoon

I have had tinutus for over 10 years, I’m a 33 year old Scottish female, I have no hearing loss at all & believed for many years that it was sertaline that caused my tinutus, however with reading your board it has made me believe otherwise , it may have just been because I started feeling anxious & depressed at that time which I now know can trigger tinutus, I struggled initially but soon habuitated to it, to the point I wouldn’t even think of it, it was never an issue in my life. 10 years forward I suddenly lost my mum when I was 5 months pregnant & after a few months of trauma that came with that the ringing began to bother me again, it made me feel very anxious & panicky , I did what most people do & trailed through internet boards & came across yours which was very helpful ..2 years later I’m in a much better place but it still bothers me when I’m trying to relax or watch TV, so it’s something I think about daily , for example looking forward to watching TV but dreading it at the same time as tinutus ruins it for me because I can only feel/hear the buzz. Which brings me on to my question, do you think the loudness has changed or do you think it’s worse because I’m bothered by it, I read that your sound has not changed but your just not bothered by it , but my ENT doctor told me that it’s only loud because I am having an emotional response to it , but that contradicts your statement that the severity of your tinutus sound has not changed? Because if your not bothered by the sound then why is it still so loud? I also have severe misaphonia which I live with quite well as I can avoid the noises but I can’t avoid tinutus which really scares me. I have a great life with a lovely family and a successful career , so I’m one of the lucky ones that doesn’t let it take over my life but I wish I could be at ease with tinnitus so I can live my life to the fullest , I am scared that it’s a new noise compared to the last one as I could relax watching tv & I wouldn’t even hear it, why all of a sudden can I hear it over the TV, do you believe if I stop letting it bother me I won’t even notice it , or do you believe I’ll always hear it but I won’t be bothered by it , I know the sounds always going to be there but I want to get to a point I don’t notice it when trying to relax.

Thank you
Dr. Nagler

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 #2 
Welcome. And thank you for your interesting post.

If I understand your questions, you are trying to figure out why your tinnitus acts the way it does so that you can develop a strategy for effectively mitigating its loudness or at least anticipate when it will be louder in the hopes that you will be able to manage it better. Is that correct?

Stephen M. Nagler, M.D.



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The best way to find yourself is to lose yourself in the service of others.
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No bird ever soared in a calm. Adversity is what lifts us.
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David McCullough quoting Wilbur Wright
3745nicoles

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 #3 
Thank you for your swift response. I know that I can not work out my tinnitus and I understand that I can’t anticipate if/when it will get louder. I guess what I would like is for me to be able to not notice that it’s there unless I purposely Seek for it, And if I do notice it I am not bothered by it, (how I was 2 years ago) but every time I sit down to watch television, I can hear it & get agitated by it, so I often worry about this throughout the day, as that is how I like to relax it’s one of my favourite things to do, but tinnitus taints this. And I understand I am giving my tinutus power when I say thiat, but how can I tackle this when I hear the tinnitus over the television , it’s all I can think about. What my biggest question to you is , do you think the sound has changed and I’ll always hear it over the television ,or do you think it’s possible that I can only hear it because I am worried about it. I was worried that having misaphonia and tinnitus would be a recipe for disaster , but then I reminded myself I lived with them both for 10 years and managed almost perfectly, imagine tinnitus was one of my many triggers , that would be torture , but then I realised most of my triggers are external sources made by people , phew! It would be my luck to have them both! Ha.

I’m just a little confused with it all , as I understand the emotional response can make it worse , but you have no emotion response to yours so why is it still so loud?

Thanks
Nicole
Dr. Nagler

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 #4 
Nicole, there are a number of factors that go into what makes a sound sound loud. We understand some of those factors (the strength of signal, the emotional (limbic) pathways and the fight-or-flight (autonomic) pathways, and some we do not understand. What we do know beyond question is that tinnitus loudness and tinnitus severity are two different animals. There are folks with very loud tinnitus that are hardly aware of it (like factory workers who are unaware of the noise of the machinery around them), and there are folks with very soft tinnitus who are all but incapacitated by it. And, of course, there are all sorts of combinations and permutations in between. Yes, my tinnitus is as loud as it ever was - when it put me in bed for a year - and now it's not exactly like I am never aware of it, but rather that I do not even think in terms of loudness anymore ... except when asked! But when asked, yes it's as loud as it ever was. It sounds like a cross between a roaring jet turbine and a screaming teakettle. 24/7.

Let me ask you another question. If you are like most folks who find their way to this site, you sought this place out not because you have tinnitus, but rather because you have tinnitus and in some form or other it makes you feel bad. If your tinnitus did not in any way make you feel bad ... then you would still have tinnitus, but you really wouldn't have a problem. Is that a fair statement?

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
3745nicoles

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 #5 
Yes my tinutus at times makes me feel bad.
Dr. Nagler

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 #6 
Quote:
Yes my tinutus at times makes me feel bad.

Thank you for your response, but I worded the question very specifically for a reason that will become apparent shortly. Here it is again:

If your tinnitus did not in any way make you feel bad, then while you would still have tinnitus, you would not have a problem. True or False?

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
3745nicoles

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 #7 
True , it’s just getting to the point that it doesn’t make me feel bad, my fear is that my misaphonia is a barrier
Dr. Nagler

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 #8 
Well, first of all there are no data to suggest that misophonia is a barrier to habituating tinnitus - so your fear is based in emotion and not in reality.

But who told you that you have misophonia in the first place? I mean, have you been formally diagnosed by a hearing healthcare professional as having misophonia - or is it something you concluded for yourself after reading a bunch of stuff on the Internet?

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
3745nicoles

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 #9 
I have severe misaphonia so much so that i only have plastic plates in my house I can not stand even a second around people eating, I have had appointments with my doctor who didn’t formally diagnose me as he knew very little about it , I was also seen by a psychologist who also had no experience in dealing with it.
Dr. Nagler

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 #10 
Last question (I promise):

If I had a magic wand (which I do not) and could cure you of one and only one condition, would you choose misophonia or tinnitus?

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
3745nicoles

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 #11 
I’ve thought of this question before & without a shadow of a doubt I would cure tinnitus
Dr. Nagler

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 #12 
Quote:
I’ve thought of this question before & without a shadow of a doubt I would cure tinnitus

I am a bit surprised by your response given the degree to which your misophonia restricts your life. But, OK.

This is what does not make sense to me:

You say that you are getting to the point where your tinnitus does not make you feel bad, yet still you would choose to cure it over a condition that according to you affects your life to the degree that it has caused you to replace the plates in your home with plastic and prevents you from dining comfortably with family and friends. Given that you are almost to the point where your tinnitus does not make you feel bad (i.e., does not affect your life), have you ever stopped to think what it is specifically about your tinnitus that causes you to want to cure it that badly?

Stephen M. Nagler, M.D.

PS - I know I said that my question in Post #10 would be my last, but now you have me completely confused. Sorry.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
3745nicoles

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Posts: 9
 #13 
I am so used to misaphonia that I know what I can do to avoid situations where I am triggered, trust me I very skilled in avoiding situations which cause me distress , but when it comes to tinnitus there is no way of avoiding it , so for example if I’ve been exposed to triggers during an outing of dining out I can’t wait to retreat to my bedroom to chill but I feel these days I can’t relax because of the buzzing (almost a sensation) disturbing my television programme, it’s the “no getting away from it”

I must point out , throughout the day I am blissfully unaware of the ringing because I can’t hear it , I and I’m not triggered with misaphonia during my working day either as I am a prison officer and for obvious reasons it’s all plastic plates!!

So yes my tinutus makes me feel bad when I am trying to relax . But I have misaphonia & can still relax. I hope this makes sense.
Dr. Nagler

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 #14 
Quote:
I am so used to misaphonia that I know what I can do to avoid situations where I am triggered, trust me I very skilled in avoiding situations which cause me distress , but when it comes to tinnitus there is no way of avoiding it , so for example if I’ve been exposed to triggers during an outing of dining out I can’t wait to retreat to my bedroom to chill but I feel these days I can’t relax because of the buzzing (almost a sensation) disturbing my television programme, it’s the “no getting away from it” 

I must point out , throughout the day I am blissfully unaware of the ringing because I can’t hear it , I and I’m not triggered with misaphonia during my working day either as I am a prison officer and for obvious reasons it’s all plastic plates!! 

So yes my tinutus makes me feel bad when I am trying to relax . But I have misaphonia & can still relax. I hope this makes sense.

So your tinnitus prevents you from relaxing in your bedroom.

If you could relax more in your bedroom, you'd be pretty OK with your tinnitus. Is that what you are saying? Please don't be upset with me; I just want to make sure I have it right.

Stephen M. Nagler, M.D.

__________________

The best way to find yourself is to lose yourself in the service of others.
- Mahatma Gandhi

No bird ever soared in a calm. Adversity is what lifts us.
-
David McCullough quoting Wilbur Wright
3745nicoles

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 #15 
Apologies for the delay I didn’t notice your reply. I just feel when I’m trying to relax anywhere it automatically hinders this, as my response to it causes some anxiety. I actually appreciate you asking questions as it makes me realise the answers I’d never considered before.
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Dr. Nagler's Tinnitus Corner is provided for education and information only. It is not intended for the purpose of providing medical care and should in no way substitute for appropriate in-person consultations with qualified healthcare professionals. By using this site, participants agree to hold Dr. Nagler and Atlanta Tinnitus Consultants, LLC harmless with respect to any loss, injury, claim, liability, or damage arising from following the postings herein.