Registered: 1436892834 Posts: 1,764
What You Can Do Stephen M. Nagler, M.D. John Wooden, the "Wizard of Westwood" and arguably the finest basketball coach in the history of the game, once said, "Do not let what you [From 1998] cannot do interfere with what you can do. Stephen Nagler, arguably the worst athlete in the history of the game, once said, "Tinnitus may be viewed as a sign to conduct one's life prudently, but not prudishly." I would like to take a few moments to examine these two aphorisms – that of the coach and that of the uncoachable – in light of what might be considered a reasonable approach that a tinnitus sufferer might take to living life. I recently treated a very interesting gentleman in my clinic. Upon first seeing this fellow, a professional wrestling announcer might refer to him as "Six Foot Seven Inches of Rompin' Stompin' Dynamite." To us at the clinic, however, he came across as living somewhat of a larval existence, surrounded by a cocoon of concern and paralyzed by the fear that he might – just might – do something that would make his tinnitus worse. By the conclusion of Mr. Smith’s interview and tinnitus evaluation, I had already decided that he would be an excellent candidate for Tinnitus Retraining Therapy, but I knew I had to also be certain to compassionately yet firmly challenge some of the distorted "all-or-nothing thinking" that had resulted in his self-imposed incarceration. Since Mr. Smith’s next appointment was scheduled for the following day, I decided to make best use of the evening ahead and recommended that he take his wife out to dinner that at a particular restaurant – one with an excellent wine list and a chocolate dessert menu that had clearly already exacted its toll on my own belt size. "Mr. Smith, what exactly is it that makes your tinnitus worse?" "Everything, just everything makes it worse. Getting up, moving around, exercising, soft music, stress, going to a mall, sleeping, eating, just everything." "Well, what seems to make it better?" "Doc, nothing makes it better." "Nothing?" "Nothing at all." "It only gets worse, right?" "Right." "Well, how bad is it right now?" "Right now it's absolutely horrible – I don't see how it could get much louder or make me more miserable. I'm at my wit's end." I explained to Mr. Smith that since according to him his tinnitus was already as bad as it could get, wine and chocolate were unlikely to make it worse. I told him and his wife to have a nice evening out – in fact I insisted on it. Moreover, I told them to enjoy a glass or two of wine ... and to be sure to try the chocolate dessert sampler. "But we don't really eat out anymore because restaurants are all so noisy. And red wine and chocolate are bad for tinnitus." The smiles on Mr. and Mrs. Smith's faces the following morning upon their return to the clinic told it all! Of course Mr. Smith's tinnitus was no worse; by his own admission it was already as bad as it could possibly be. Actually, things seemed a bit better – and he and his wife had enjoyed a pleasant evening out. We spent the next few hours reviewing the principles of Tinnitus Retraining Therapy and also began to work on addressing some of Mr. Smith's other cognitive distortions, his emotion-based thinking. We additionally talked for quite some time about how Mr. Smith might go about not letting what he cannot do interfere with what he can do. Some basic guidelines then – A person affected by tinnitus cannot afford to be exposed to excessively loud noise for any appreciable amount of time. How loud is too loud? It seems to me a bit compulsive to carry around a decibel meter everywhere, so I would simply offer Dr. Jack Vernon's guideline: If the sound in a room is so loud that a person affected by tinnitus must raise his or her voice in order to be heard, then that person should either leave the room or use ear protection. On the other hand, it is very important to avoid over-protection, which can lead to hyperacusis and can actually compound the problem. A person affected by tinnitus should not take medications known to potentially cause damage to the auditory system, unless the situation is life-threatening and no acceptable alternative can be found. These ototoxic medications include the aminoglycoside antibiotics when given by vein or by injection (e.g., gentamicin, streptomycin, amikacin, neomycin, tobramycin); the quinine-based antimalarials (e.g., chloroquine) and quinine-based antiarrhythmics (e.g., quinidine); and the platinum-based chemotherapeutic agents (e.g., cisplatin). Additionally, for compelling anecdotal reasons I personally do not believe that tinnitus patients should take the antibiotic Zithromax (azithromycin) or the non-steroidal anti-inflammatory agent Relafen (nabumetone). A person affected by tinnitus can and should be exposed to all kinds of sound that is not excessively loud. The auditory system flourishes in the presence of environmental sound, and it starves in the presence of prolonged environmental silence. Moreover, in the absence of environmental sound, the auditory system will do what it is meant to do – seek sound – and in so doing, tinnitus will be unnecessarily magnified. Tinnitus sufferers can consider taking medications (with the exception of those ototoxic agents mentioned above) from that long list of medications reported to occasionally cause or exacerbate tinnitus as a side-effect if the use of such medication is medically indicated. Since these drugs do not cause damage to the auditory system, any tinnitus exacerbation due exclusively to their use should resolve within a few days. In my mind there is no need to deprive oneself of medically indicated treatment for fear of the remote possibility of temporary aggravation of tinnitus. Even aspirin, the classic offender, may be taken safely – especially in the kind of small doses recommended by cardiologists. Very high doses of aspirin will cause temporary tinnitus in anyone, but it is extremely rare that one aspirin a day will have an adverse effect. In moderation a person affected by tinnitus can and should feel comfortable about participating prudently as he or she may wish in life's activities, as long as those activities are legal, ethical, and not unhealthy. It is a source of constant wonder to me how many people affected by tinnitus have given up that morning cup of coffee, that once a week (or more than once a week my waistline says) chocolate dessert, or that glass of red wine they used to so enjoy with dinner. If you enjoy coffee, then have a cup. If you enjoy wine, then have a glass. If wine were damaging to the auditory system, then it would be prudent not to have wine. But wine does not damage the cochlea. So it would be prudish to avoid a glass or two if you really enjoy wine with dinner. On the other hand, it would be prudent not to drink any wine at all with dinner if you were an alcoholic. It would be prudent not to drink any wine at all with dinner if you were taking Xanax or a similar medication. It would be prudent not to drink any wine with dinner if you did not like wine or if you simply did not wish to drink any that night. And it most certainly would be prudent not to drink eight glasses of wine with dinner, but that suggestion has nothing to do with tinnitus. Most importantly, if that glass or two of wine with dinner did, indeed, exacerbate your tinnitus, then it would be prudent to decide whether or not you would want to have a glass occasionally anyway, basing that decision on the knowledge that no harm was being done to the cochlea and not on the unfounded fear that a little wine, a little coffee, a little chocolate might do some irreparable damage. It is prudent for a person affected by tinnitus to look forward to the knowledge the future may bring, but it is prudish for a person affected by tinnitus to be paralyzed by fear of the knowledge the future may bring. There are in all probability numerous environmental and dietary influences that currently wreak havoc upon our auditory systems, but about which we are completely unaware. Imagine conversations in the otological and audiological communities twenty years from now: "Do you believe it? Those folks back in '98 actually ate salad! Everybody knows salad damages the cochlea and causes tinnitus. How could they be so foolish and irresponsible?" Well, today it is not foolish and irresponsible to eat salad, to drink Coke, to take ibuprofen, to chew a Hershey bar, to live up in the Rockies at altitude, and to put spices in foods. If we constantly ruminate about the future, we will be unable to take full advantage of the present – not only to exist, but to live.
So listen to the coach, and listen to the uncoachable. Do not let what you cannot do interfere with what you can do; and in so doing consider conducting your life in a prudent manner, but not a prudish one. Tinnitus is a bad enough deal as it is; do not let it take an additional toll unnecessarily.
.......... [Epilogue from 11/99] The above piece was written in the spring of 1998. I subsequently had the opportunity to see Mr. Smith in follow-up at eighteen months. He had, indeed, participated in the outlined protocol – willingly, but at first somewhat skeptically. His Tinnitus Retraining Therapy was undertaken and completed precisely as recommended by Jastreboff for Category I tinnitus patients. Mr. Smith had undergone three TRT counseling sessions with application of the Neurophysiological Model tailored to his individual circumstances – an initial session in person, a follow-up session in person six months later, and another follow-up session by telephone six months after that. Moreover he had been in contact with us by telephone on several occasions as additional issues arose. And he had been wearing white noise generators in each ear set at a very comfortable level just below the "mixing point" to decrease sensory contrast and take advantage of associative conditioning – all precisely according to TRT Category I methodology.
This man, who had been for all intents and purposes paralyzed by his tinnitus, was "back" – sense of humor and all. "Doc, my tinnitus is there, but I'm not aware of it most of the time ... and it doesn't stop me from doing anything – anything at all, except playing the piano." "Why can't you play the piano, Mr. Smith?" "Because I never learned!!!" His score on the Oregon Hearing Research Center Tinnitus Severity Index had dropped by 75%. The intrusiveness of his tinnitus had dropped from 10/10 to 2/10. He still had tinnitus – he could hear it anytime he listened for it. But throughout an average day in his life, he was not aware of it much at all ... and when he was aware of it, he was not annoyed by it. This from a man who had by his own account at his intake interview been aware of his tinnitus 100% of his waking hours, and for whom tinnitus had essentially dictated his every move. Friends, there is no universal cure for tinnitus. Someday there may be one, but not today. And as we look to tomorrow for the cure, I find it very reassuring to know that today – even though a person might have tinnitus, the person need not suffer from tinnitus ... indeed, that person need not even be aware of it! Let me tell you about a man, a man who was so religious and devout that he prayed three times a day – every day – with all his heart and soul. Not only that, he was constantly helping others – he was generous with charities, he assisted in soup kitchens, he visited the sick in hospitals, he gave shelter to the homeless. Joe was just wonderful. He was a real "good guy," and everybody in the town knew him, liked him, and respected him. One day, a huge storm arose, bringing rains and floods so bad that one would think they'd never cease. As the floodwaters rose, Joe had to leave the bottom level of his home and go upstairs, so he wouldn't drown. Somebody going by on a raft looked in the window of the house, noticed Joe's dire straits, and offered him a life preserver. Joe politely refused, claiming that since he was such a religious and charitable man, God would surely perform a miracle, cause the rains to stop, cause the floodwaters to recede, and save him. Joe then had to go up on the roof of his home as the waters continued to rise. Another fellow came by in a boat, and said, “Joe, jump in – let me help you." Joe steadfastly refused, claiming that God would surely perform a miracle, cause the rains to stop, cause the floodwaters to recede, and save him. He then crawled to the top of the chimney, as the waters rose even more. A helicopter came by and dropped down a rope ladder. Joe wouldn't climb up, knowing for sure that God would perform a miracle, cause the rains to stop, cause the floodwaters to recede, and save him any minute. Well, the story is obvious, isn't it? Joe drowns, and he meets up with God in Heaven. God says, "Joe, good to see you. How ya doin'?" Joe says, "Well it's a real nice place you have here, God, but – to tell you the truth – I'm a little upset ... I wasn't ready to die. Why didn't you stop the rain ... why didn't you cause the floodwaters to recede ... why did you let me die?" And God responds, "Joe, Joe, what do you want? I did cause the rain and the floods – that's true. But I also sent you a life preserver, I sent you a boat, I sent you a helicopter. What'd you expect? A miracle, maybe?" Intrusive tinnitus is a bad deal – it is an incredible test of the human spirit. But there is legitimate hope. There are effective treatments now – TRT, cognitive behavioral therapy, and more. We have the life preserver, the boat, and the helicopter. We have them now. I would suggest that we not ignore the life preserver, the boat, and the helicopter today – while waiting for the miracle of the cure tomorrow. Dr. Stephen Nagler Atlanta Tinnitus Consultants, LLC __________________ The best way to find yourself is to lose yourself in the service of others. - Mahatma Gandhi David McCullough quoting Wilbur Wright
No bird ever soared in a calm. Adversity is what lifts us. -